Welcome to a Fly on the Wall group post. Today 4 bloggers are inviting you to catch a glimpse of what you’d see if you were a fly on the wall in our homes. Come on in and buzz around my house.
Things have been pretty quiet this month around our house. It’s already hell-hot here in South Carolina and I’m dreading another hotter than hell existence for the next couple of months.
This year is different though, because I have a new medical issue that is making me crazy. Apparently, one of the side effects of my meds is that the sun literally burns my skin the moment I walk outside. If I ride in a car my right arm gets blisters. If I drive the left arm. Go outside and I’m an itchy, blistery mess.
According to my daughter, it’s the Hydroxychloroquine that is causing these issues so after a decade I’ve stopped taking it. This brought me to an epiphany of sorts. I honestly believe that the amount of meds I have to take every single day is probably what will kill me in the long run.
So, I’ve made a decision. I have completely gone off of my meds for the foreseeable future. Well, let me clarify. I’ve gone off of two of meds (keeping my crazy pills, you’ll thank me later). I’ve decided to go with a more holistic approach even though I haven’t a clue what that looks like yet, but we’ll see.
I’m a little achier, but it takes 3 months for the Hydroxy to get out of my system. That means this summer is going to be crazy! We just got a new boat and truck (hubby’s Father’s Day gift from my daughter), we love to fish and camp. I’m not willing to give up my summer fun so I’ve purchased these shirts below and I can’t wait for them to arrive!
These shirts have UV protection, they’re very thin and long sleeve. Oh did I mention that I had just purchased a bunch of new clothes because I’ve lost about 35 lbs. I bought shorts, t-shirts and even a couple of dresses. Now, I’m not sure when I’ll be able to wear most of it. It’s always something different when you have Felty’s Syndrome, but one thing I won’t do is let it run my life.
Having an autoimmune disease means you need to be flexible, think outside of the box and do what feels right for you. So, I’ve decided no more infusions, no more drugs. I’m going to concentrate on diet, exercise and natural remedies. I’m not sure how it will go, but it has to be better than looking out at a world that you want to be a part of, but can’t. Who knows maybe the crazy pills will be the next thing to go!
Have you made any lifestyle changes lately?
Buzz around, see what you think, then click on these links for a peek into some other homes:
Baking In A Tornado https://www.BakingInATornado.com
Never Ever Give Up Hope https://batteredhope.blogspot.com
Menopausal Mother http://www.menopausalmom.com/